Journal of Pharmaceutical Care & Health Systems
Open Access

Yukawa K

Publications

• Research Article
  Portal Sites for Clinical Trial Information: Comparison of 17 Registries and Creation of a Patient-Centered New Site for the Japan Primary Registries Network
  Author(s): Yukawa K, Sato H and Fujii HYukawa K, Sato H and Fujii H
  
  Background: Several countries have established registries of clinical trials for intractable diseases to disseminate information. These registries are compared to glean their best features and learn from their drawbacks in order to create a patient-centered portal site for the Japan Primary Registries Network (JPRN). Method: We reviewed information available through 17 registries. The contents and types of information available from these countries registries accessed via the International Clinical Trials Registry Platform were summarized and compared. The findings guided the redesign of the new JPRN portal site. Results: Nearly all registry websites provide basic features. The majority of registries were created with a focus on providing information of value to registered users (i.e., medical personnel and researchers) through “FAQs” and “Help” pages. The stud.. View More»
  DOI: 10.4172/2376-0419.1000169

  Abstract PDF

Relevant Topics