ISSN: 2155-9554
+44 1478 350008
Department of Dermatology, Churchill Hospital, Oxford, United Kingdom
Research Article
An Exploratory Study Examining the Long-Term Mental Health Impact of Stevens-Johnson Syndrome and Toxic Epidermal Necrolysis on Paediatric Patients and their Parents
Author(s): Christopher Phillips*
Background: Steven Johnsons Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN) are rare but devastating skin
conditions. In adults, the long-term psychological sequelae are known, however, there is no such research in the
paediatric population. Our study’s aim was to explore the experiences of Children and Young People (CYP) and their
parents during and after their illness and the subsequent physical and psychological sequelae.
Method: A retrospective qualitative study with a grounded theory approach was undertaken using detailed semistructured
interviews. 13 CYP and families who had been admitted to a tertiary referral centre were interviewed.
Interview transcripts were analysed by three different researchers and themes emerging were identified.
Results: Age range of those interviewed was 10-24 y.. View More»
DOI:
10.35841/2155-9554.24.15.671